Seven year old Oakville girl represents Cystic Fibrosis Canada

Cystic Fibrosis Canada
Seven year old Oakville girl represents Cystic Fibrosis Canada
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Nolan A Machan

Nolan A Machan

Nolan Machan is the Publisher of OakvilleNews.Org and has over 41 years of local Oakville knowledge. He is committed to providing Oakville residents with the most up-to-date information about our great town.

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Sloane, a seven year old girl from Oakville has been chosen to be the face of Cystic Fibrosis Canada. Sloane, was born at Credit Valley Hospital on July 7, 2010, and lives with her family in Oakville.

When she was born, her nurse immediately noticed her belly was distended. After one day in the special care nursery at CVH, Sloane was transferred to SickKids. She spent the next three weeks under the watchful eye of Dr. Hilary Whyte in the NICU. The newborn screening at CVH detected an early diagnosis of Cystic Fibrosis (CF).

After her first surgery, they discovered she had meconium ileus, a clear marker for CF. As a result of her meconium ileus, Sloane had an ileostomy in place for six weeks. A reversal surgery was performed one day short of six weeks. From that point, she flourished and grew!

Cystic fibrosis is a genetic disease. It typically presents in early childhood and is often misdiagnosed. In June 2017, Quebec announced that it would screen for Cystic Fibrosis at birth. Now all Canadian provinces test newborns for CF. Early detection is key to improve healthly outcomes. Cystic Fibrosis presents differently for every person. Some patients present extreme lung dysfunction, others live with digestive issues, and most live with both.

Most people living with CF eat a high-fat, high calorie diet, and take enzyme pills with every meal in order to digest their food and help them absorb nutrients. Nebulized drugs are inhaled to loosen and thin the thick, sticky mucous caused by CF. Chest physiotherapy clears the mucous from their lungs. Typically oral, nebulized or intra-venous antibiotics are taken. They are frequently hospitalized. Exercise is paramount to maintain their health and lung function.

Cystic Fibrosis Canada

Aside from the emotional toll, the financial cost for families is substantial. Medications are expensive. Most families rely on private insurance or provincial plans to access these medications. Frequent trips to specialized clinics involve taking days off work.

Since establishment, Cystic Fibrosis Canada has invested over $244 million in leading research, innovation and care. As a result, Canadians with Cystic Fibrosis have one of the highest median survival rates in the world (53.3 years). 4,200 Canadians live with Cystic Fibrosis.

The organization relies on the generous support of volunteers, donors, and partners. Ultimately to find a cure for this devastating disease is Cystic Fibrosis Canada main goal, but currently their aim is to improve the lives of Canadians living with Cystic Fibrosis.

To support those in your community living with CF, you can get involved in your local CF Canada Chapter or donate at 31reasons.ca.

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